Remotely collected data


Tables containing data collected from the ADNI remote cohorts are available under the ADNI Online -> Remotely Collected Data subheading. See [here][2] for a more general description of the digital cohort.

The methods document available on that page contains a detailed description of the contents of each of the files, along with some usage notes.

Structural identifiers

One noteworthy feature of the remotely collected data set is the inclusion of new structural fields, including a new participant identifier and a new longitudinal timepoint system.

ADNIONLINEID is the remote participant identifier, which applies to participants in any of the Remote cohorts. Every participant in a Remote cohort, whether they entered the via in-clinic cohort or through the Digital Screening cohort, is assigned an ADNIOnlineID.

Digital participants who are co-enrolled in the in-clinic ADNI study will also have a PTID present in the tables.

RMT_TIMEPOINT is a new longitudinal identifier for the remote, digital arm of the study. For more information on the structure of these timepoints, please see the ADNI4 Remote Protocol.

The coding of RMT_TIMEPOINT is similar to the VISCODE2 system in the in-clinic data, reflecting a follow-up at a given month as measured from baseline - with m00 representing the initial remote timepoint, m06 the 6-month longitudinal follow-up, m12 the 12-month longitudinal follow-up, etc.

Note that these digital follow-ups are independent of a participant’s in-clinic schedule for those who are co-enrolled in the in-clinic and digital cohorts. Any temporal association between in-clinic and remote data should be assessed using continuous time variables in either data set. For the remote cohort, the continuous time variable of choice is RMT_StatusDate.