March 2026

Summary:

Data collected from 78 ADNI participants has been removed from the IDA.

Description:

A recent review of ADNI data raised a serious data quality concern.

ADNI leadership reviewed the data in question, and after extensive analyses and discussion, made the decision to remove the data from PTIDs with the format 381_S_#####.

Of particular concern was the clinically acquired cognitive and functional assessment data. Due to the critical nature of those results for interpreting ADNI biomarker data, the decision at this time has been to remove all data associated with those PTIDs.

All affiliated data from those 78 PTIDs have been removed from the LONI-IDA ADNI data repository.

Recommendations:

ADNI leadership strongly advises that data with these PTIDs not be used in any analysis, submission of abstracts, or publications. 

Furthermore, the ADNI leadership requests that any abstracts or papers which have been submitted using these data be appropriately revised due to concerns with the data quality.  Finally, a reminder that the ADNI Data Use Agreement states that no efforts can be made to identify the ADNI participants or ADNI site locations.